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Ouch!

By Kevin | August 21, 2008
Under: Ankylosing Spondylitis, Support Group, Writing

Ouch!  I didn’t realize it had been so long since I last wrote!  Initially I was waiting for word from the Canadian Spondyloarthritis Association and The Arthritis Society regarding getting a support group, and an Alberta chapter of the CSA going, but due to (I assume) summer vacations, it’s been hard to get everyone sitting down except me.  One of the Directors of the CSA has been in touch, and we may be meeting tomorrow, and if not, Monday or Tuesday.  The number one thing in my mind is getting that Support Group started.  I know that I could use it, and from the pain, tension, and frustration I heard at the Forum from other A.S. Survivors, I know I’m not alone.  I haven’t had any luck finding suicide rates among Ankylosing Spondylitis patients, but I’m sure we could have prevented some over the last 10 years if such a group existed here.  The fact that we have some of the most respected researchers for Arthritis in general, and A.S. in particular, and have no support group or fundraising for these folks, just blows my mind.

On the other front, I’m going to schedule in my calendar, three hours a week, to devote to writing - blog, the novel I have been writing and am stuck with writer’s block on lately, a long forum post, whatever.  Stick with me if you can :)

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